File #: Int 0968-2023    Version: Name: Establishing guidance to improve health outcomes for individuals affected by sickle cell disease.
Type: Introduction Status: Enacted
Committee: Committee on Health
On agenda: 3/16/2023
Enactment date: 12/3/2023 Law number: 2023/163
Title: A Local Law to amend the administrative code of the city of New York, in relation to establishing guidance to improve health outcomes for individuals affected by sickle cell disease
Sponsors: Mercedes Narcisse, Farah N. Louis, Marjorie Velázquez, Kristin Richardson Jordan, Kalman Yeger , Lynn C. Schulman, Crystal Hudson, Sandra Ung, Shaun Abreu, Kevin C. Riley, Linda Lee, Jennifer Gutiérrez, James F. Gennaro, Selvena N. Brooks-Powers, Julie Won, Rita C. Joseph, Shahana K. Hanif, Shekar Krishnan, Carlina Rivera , Oswald Feliz, Kamillah Hanks, Sandy Nurse, Nantasha M. Williams, Pierina Ana Sanchez, Tiffany Cabán, Alexa Avilés, Charles Barron, Inna Vernikov, Public Advocate Jumaane Williams, (by request of the Manhattan Borough President)
Council Member Sponsors: 29
Summary: This bill would require the Department of Health and Mental Hygiene, in consultation with New York City Health and Hospitals, to create guidance to educate medical professionals and the public on the detection of the sickle cell trait through pre- and post-conception genetic screening and on the management and treatment of sickle cell disease. Guidance for medical professionals is required to include education on the benefits of recommending screenings during the family planning process and on nondiscriminatory approaches to assess patient pain, including instruction on implicit bias in the provision of pain management. The bill would also require that pre- and post- conception genetic screening for sickle cell trait be offered to those who fall into an at-risk population or for whom such screening is otherwise medically recommended.
Attachments: 1. Summary of Int. No. 968-B, 2. Summary of Int. No. 968-A, 3. Summary of Int. No. 968, 4. Int. No. 968, 5. March 16, 2023 - Stated Meeting Agenda, 6. Hearing Transcript - Stated Meeting 3-16-23, 7. Minutes of the Stated Meeting - March 16, 2023, 8. Proposed Int. No. 968-A - 8/22/23, 9. Committee Report 9/20/23, 10. Hearing Testimony 9/20/23, 11. Hearing Transcript 9/20/23, 12. Proposed Int. No. 968-B - 10/26/23, 13. Committee Report 11/2/23, 14. Hearing Transcript 11/2/23, 15. Committee Report - Stated Meeting, 16. November 2, 2023 - Stated Meeting Agenda, 17. Hearing Transcript - Stated Meeting 11-2-23, 18. Int. No. 968-B (FINAL), 19. Fiscal Impact Statement, 20. Legislative Documents - Letter to the Mayor, 21. Local Law 163, 22. Minutes of the Stated Meeting - November 2, 2023
Date Ver.Prime SponsorAction ByActionResultAction DetailsMeeting DetailsMultimedia
12/4/2023BMercedes Narcisse City Council Returned Unsigned by Mayor  Action details Meeting details Not available
12/3/2023BMercedes Narcisse Administration City Charter Rule Adopted  Action details Meeting details Not available
11/2/2023BMercedes Narcisse City Council Sent to Mayor by Council  Action details Meeting details Not available
11/2/2023BMercedes Narcisse City Council Approved by CouncilPass Action details Meeting details Not available
11/2/2023*Mercedes Narcisse Committee on Health Hearing Held by Committee  Action details Meeting details Not available
11/2/2023*Mercedes Narcisse Committee on Health Amendment Proposed by Comm  Action details Meeting details Not available
11/2/2023*Mercedes Narcisse Committee on Health Amended by Committee  Action details Meeting details Not available
11/2/2023BMercedes Narcisse Committee on Health Approved by CommitteePass Action details Meeting details Not available
9/20/2023*Mercedes Narcisse Committee on Hospitals Laid Over by Committee  Action details Meeting details Not available
9/20/2023*Mercedes Narcisse Committee on Hospitals Amendment Proposed by Comm  Action details Meeting details Not available
9/20/2023*Mercedes Narcisse Committee on Hospitals Hearing Held by Committee  Action details Meeting details Not available
9/20/2023*Mercedes Narcisse Committee on Health Laid Over by Committee  Action details Meeting details Not available
9/20/2023*Mercedes Narcisse Committee on Health Amendment Proposed by Comm  Action details Meeting details Not available
9/20/2023*Mercedes Narcisse Committee on Health Hearing Held by Committee  Action details Meeting details Not available
3/16/2023*Mercedes Narcisse City Council Referred to Comm by Council  Action details Meeting details Not available
3/16/2023*Mercedes Narcisse City Council Introduced by Council  Action details Meeting details Not available

Int. No. 968-B

 

By Council Members Narcisse, Louis, Velázquez, Richardson Jordan, Yeger, Schulman, Hudson, Ung, Abreu, Riley, Lee, Gutiérrez, Gennaro, Brooks-Powers, Won, Joseph, Hanif, Krishnan, Rivera, Feliz, Hanks, Nurse, Williams, Sanchez, Cabán, Avilés, Barron, Vernikov and the Public Advocate (Mr. Williams) (by request of the Manhattan Borough President)

 

A Local Law to amend the administrative code of the city of New York, in relation to establishing guidance to improve health outcomes for individuals affected by sickle cell disease

 

Be it enacted by the Council as follows:

 

Section 1. Chapter 1 of title 17 of the administrative code of the city of New York is amended by adding a new section 17-199.24 to read as follows:

§ 17-199.24 Sickle cell trait and disease. a. Professional guidance. 1. In consultation with the New York city health and hospitals corporation, the commissioner shall create guidance on the following topics to educate medical professionals who work within the city:

(a) The detection of sickle cell trait through pre- and post-conception genetic screening; and

(b) The management and treatment of sickle cell disease.

2. The guidance created pursuant to this subdivision shall include the benefits of recommending screenings to individuals prior to pregnancy and education on non-discriminatory approaches to assess patient pain, including instruction on the effects of implicit racial bias in the provision of pain management and methods to remediate such effects and ensure patients receive effective pain management care, as well as education about the history of medical discrimination, race-based medical experimentation, and the effects of such discrimination on patients and their medical decision making.

3. The guidance created pursuant to this subdivision shall be posted on the department’s website, distributed to medical providers and practices in the city, and publicized to at-risk populations through public awareness campaigns.

b. Genetic screening. The commissioner, in consultation with the New York city health and hospitals corporation, shall ensure that sickle cell trait pre- and post-conception genetic screening shall be offered to individuals who fall into an at-risk population, as determined by current medical research, or for whom such genetic screening is otherwise medically appropriate or recommended.

c. Report. No later than June 1, 2025, and annually thereafter, the department shall submit to the speaker of the council a report summarizing the available data regarding the presence of sickle cell trait and sickle cell disease in the city, to the extent such data can be released in accordance with applicable laws, rules, and regulations. Such report shall also include a summary of the department’s efforts to educate practitioners and at-risk populations about the availability of pre- and post-conception genetic screening.

d. Online publication of materials. The commissioner shall provide information related to sickle cell trait and disease on the department’s website, including information regarding the importance of genetic screening for the sickle cell trait for at-risk populations, and the locations of medical providers, practices, and facilities where such individuals can receive such screenings, in English and in the designated citywide languages as defined in section 23-1101.

§ 2. This local law takes effect 1 year after it becomes law.

 

 

AM/RO/SOS

LS #3278/10444

10/25/23 6:48pm